Her mother, Jane Evans, said Indiana was sick with a cough in early March. Although she didn’t have any other coronavirus symptoms, her parents kept her at home for two weeks according to government guidelines.
Her mother told CNN she had never been so ill that she was hospitalized. However, the teenager – who was planning to take the entrance exam to prestigious dance schools – now barely managed to go to the supermarket.
Like many others who fell ill during the early weeks of the pandemic in Great Britain, Indiana had never been tested for coronavirus. But her mother said doctors had diagnosed her with viral fatigue after Covid.
She was one of the few children who seemed to still have coronavirus-related symptoms months after becoming sick for the first time, according to their parents.
While Covid-19’s symptoms are generally milder in children than in adults, with a much lower chance of hospitalization of the child, the virus can still endanger children’s health – one point emphasized by Dr. Anthony Fauci, director of the US National Institute of Allergy and Infectious Diseases (NIAID). Some even died.
‘There are many unknowns’
Athimalaipet Ramanan, Emeritus Professor of Rheumatology in Pediatrics, said: “Infection in children is really divided into two categories – primary viral infection seems to be a largely benign event in children, except for a small number of pre-existing diseases ”. at the University of Bristol in the UK.
“But the problem in a small number of children is hyperinflammatory syndrome, where they are quite uncomfortable and require hospitalization.”
Ramanan said he has not seen any children with clear, mild long-lasting Covid symptoms. “Maybe they’re starting to drip through the primary care system,” he said. “I think we’ll know more about this in the coming months.”
One challenge, he said, is that it is not yet clear that such symptoms are caused by the coronavirus. Another is that because children are so slightly affected, they are not given priority in testing. “We will have to work to determine if these are the random findings of the coronavirus era or if they are related to the coronavirus,” he said.
Indiana looked better at first after a week – but 10 days later, starting to feel exhausted, her mother said. At first, teen tried to keep up with school assignments and practice dancing online but her symptoms seemed to get worse after doing any of the exercises.
Over the next days, Indiana started to experience a migraine and saw lights flashing. “Her face is swollen, her eyes are swollen and a rash is spread all over,” Evans said. She contacted her doctor after Indiana started having chest pain and palpitations but was told her daughter was just resting, she said.
Evans said Indiana was eventually transferred to the hospital for check-ups to rule out other problems. “All the results are absolutely fine, nothing stands out in her chest x-ray or blood test even though she is feeling very tight breasts,” her mother said.
She will soon initiate one-to-one rehabilitation classes to aid her breathing and strengthen her muscles.
Evans is still not sure what will happen ahead for her former “extremely active, very healthy” daughter, who will enter a new school in September.
“In our experience, it’s like an evolution. Viruses evolve in the body from one thing to another. You’re okay and then something else happens,” Evans said. “There are too many unknowns. We don’t know how long this will last, we don’t know what will happen if she starts exercising again.”
Evans, like other parents who believe their child is suffering from the long-term effects of coronavirus, is also concerned. that Indiana may be denied healthcare assistance because she does not have a positive test result.
“We just have to do it one day at a time,” says Evans. “I think the hardest thing for her is not knowing what will happen in the future. She can’t dance, she’s very conscious of it – and it’s a huge part of her life. before.”
‘Roller coaster for the whole family’
Birgit, from East Sussex, southeast England, said her previously active 7-year-old son was still tired, lost weight and couldn’t run away without a significant loss of breath, four months after the match. co-suspect is Covid-19. She and several other individuals in this post ask to be identified only in part because of privacy concerns.
Birgit said she, their husband and their son fell ill in mid-March and are all still recovering. “It’s a roller coaster for the whole family,” said Birgit.
Her son’s symptoms started with temperature, diarrhea and conjunctivitis, she said. “He had patchy skin and became quite distracting. Over the next few weeks, he was really anorexic – which he still had – became quite crying, and normally he was a boy. very cheerful, active. ”
His symptoms, which were intermittent, also included fatigue and difficulty swallowing, she said. “I am also very concerned about his mental state, especially when we have been sick for a long time and often come back.”
At one point, she said, things got so bad that she and her husband created a legal document regarding the care of their son if both were hospitalized or worse. “That plan reassured him but it was a tough conversation with a seven-year-old,” she said.
Birgit said she got very little support from her general practitioner or the National Health Service’s 111 counseling service. No one in the family has been tested, although doctors told her they believe she has Covid-19 and a letter leaving her that is likely Covid-19.
“It’s uncertain – I wonder where this is going and for my boy, what this will mean for him with sport,” she said. “I don’t want to be dumb, at least all he has is having difficulty breathing, but I don’t know what that means in the continuance. Should we check his lungs? Yes.” too little guidance. “
Charlotte, from Buckinghamshire, in the south of England, also believes that her son has been under the prolonged influence of Covid-19, although he now appears to be fully recovered.
Freddie, 10, fell ill in March and was given inhalers and steroids after having a cough to the point of having difficulty breathing, she said. He recovered in about a week but then developed a rash, followed by diarrhea that lasted for several weeks.
Charlotte had a negative antibody test result but her son has yet to be tested, she said, adding that the boy’s symptoms were similar to hers.
‘They get scared when they go back to school’
Jen Stefanic, who lives in a rural county in the northwestern US state of Idaho, says her three children, a 12-year-old boy and a 10- and 7-year-old girl, have all experienced a variety of symptoms. since the end of May. All are normally very active and healthy.
Symptoms include headache, low-grade fever, soreness and chills, joint pain, rash, acid reflux, diarrhea, insomnia, loss of smell and smell, cough, and wheezing, Stefanic said. swelling of limbs.
There were no tests for coronavirus, she said, but her family doctor told her they were all infected. She and her husband first fell ill in March.
“I really think this virus has changed everything in each of us,” she said. “My heart hurts because they are scared back to school.”
Another mother in English Midlands, who requested to be called Jane, said her three sons are now recovered but she continues to suffer debilitating symptoms after falling ill in March.
The eldest son, just 16 years old, had Covid toes – where his toes and heels turned dark purple – for three months but on the other hand was feeling fine, she said.
One of her 11-year-old twins suffered from sore throat, chest tightness, abdominal discomfort, toe covid and continued nosebleeds every day. He’s just said he’s feeling normal since mid-July.
The other twin suffered from joint pain in the knees and hips, followed by frequent illnesses and diarrhea for several weeks, she added.
Doctor: There are no specific data
Researchers have so far focused their attention on a small number of children hospitalized for MIS-C, rather than those with persistent symptoms after exposure to coronavirus is suspected.
Dr. Nathalie MacDermott, an academic clinical lecturer at the National Institutes of Health Research at King’s College London and a London hospital doctor, told CNN that she has seen many cases of children affected by MIS-C. than acute Covid-induced respiratory disease.
“There are currently no published specific data regarding children and long-term problems, but that’s because we are still quite early and children have not been badly affected,” MacDermott said. Also, given the relatively small number of children participating, studies may need to look at children in many countries, she said.
“There is certainly a possibility that children have problems that we are hearing in adults, such as prolonged fatigue,” she said. “From a clinical perspective, we only really see children hospitalized so it’s difficult to know what’s going on in the community.”
MacDermott recommends that parents of children with “significant persistent symptoms” seek help through their primary care providers to make sure potential conditions are not overlooked. other.
“It is important for everyone to realize that pediatric services are now fully functional,” she said, adding that not having a positive test result will not rule out children who are not in care. after Covid.